JASON Views Challenges of Electronic Health Data
The ongoing transition to electronic storage of individual health information was examined in a newly released study from the JASON scientific advisory panel.
“The two overarching goals of moving to the electronic exchange of health information are improved health care and lower health care costs. Whether either, or both, of these goals can be achieved remains to be seen, and the challenges are immense,” the JASON study says.
See A Robust Health Data Infrastructure, prepared for the Department of Health and Human Services, November 2013 (approved for release April 2014).
The JASON study addresses the tension between personal health information, which is “sensitive and therefore must be carefully safeguarded,” and aggregated population health data, which are “a highly valuable, and largely untapped, resource for basic and clinical research.”
“It is in the public interest to make such [aggregated population] information available for scientific, medical, and economic purposes.” Reconciling these competing imperatives of privacy and information sharing is one of the challenges to be overcome.
The JASONs, who normally deal with defense science and technology, strain to affirm a relationship between health and national security. (“From a national security perspective it is important to have an accurate assessment of the current health and potential health vulnerabilities of the population.”)
Interestingly, they suggest that because the United States is less ethnically homogenous than many other countries, it “has a special advantage” in conducting certain types of medical research.
The U.S. “is a genetic melting pot that can be a crucible for discoveries related to personalized medicine and the genetic basis of disease,” the JASONs said.
This rule gives agencies significantly more authority over certain career policy roles. Whether that authority improves accountability or creates new risks depends almost entirely on how agencies interrupt and apply it.
Our environmental system was built for 1970s-era pollution control, but today it needs stable, integrated, multi-level governance that can make tradeoffs, share and use evidence, and deliver infrastructure while demonstrating that improved trust and participation are essential to future progress.
Durable and legitimate climate action requires a government capable of clearly weighting, explaining, and managing cost tradeoffs to the widest away of audiences, which in turn requires strong technocratic competency.
FAS is launching the Center for Regulatory Ingenuity (CRI) to build a new, transpartisan vision of government that works – that has the capacity to achieve ambitious goals while adeptly responding to people’s basic needs.