Building Trust In the Health Data Ecosystem
Summary
Pending bipartisan “Cures 2.0” legislation is intended to safely and efficiently modernize healthcare delivery in the wake of the novel coronavirus (COVID-19) pandemic. Such modernization is contingent on access to high-quality data to power innovation and guided decision-making. Yet over 80% of Americans feel that the potential risks of companies collecting their data outweigh the benefits. To ensure the success of Cures 2.0, provisions must be added that bolster public trust in how health data are used.
Addressing the largely unregulated activities of data brokers — businesses that collect, sell, and/or license brokered personal information — offers a budget-neutral solution to the public’s crisis of faith in privacy. Building a well-governed health-data ecosystem that the public can trust is essential to improving healthcare in the United States.
The federal government can support more proactive, efficient, and cost-effective resiliency planning by certifying predictive models to validate and publicly indicate their quality.
The cost of inaction is not merely economic; it is measured in preventable illness, deaths and diminished livelihoods.
Through investments in infrastructure for heat safety, Congress can save lives, protect the economy, and enhance resilience nationwide.
A deeper understanding of methane could help scientists better address these impacts – including potentially through methane removal.