Building Trust In the Health Data Ecosystem
Summary
Pending bipartisan “Cures 2.0” legislation is intended to safely and efficiently modernize healthcare delivery in the wake of the novel coronavirus (COVID-19) pandemic. Such modernization is contingent on access to high-quality data to power innovation and guided decision-making. Yet over 80% of Americans feel that the potential risks of companies collecting their data outweigh the benefits. To ensure the success of Cures 2.0, provisions must be added that bolster public trust in how health data are used.
Addressing the largely unregulated activities of data brokers — businesses that collect, sell, and/or license brokered personal information — offers a budget-neutral solution to the public’s crisis of faith in privacy. Building a well-governed health-data ecosystem that the public can trust is essential to improving healthcare in the United States.
Extreme heat poses serious and growing risks to children’s health, safety, and education. Yet, schools and childcare facilities are unprepared to handle rising temperatures.
Wildland firefighters manage, suppress, and prescribe fires on our nation’s public lands, protecting all of us. Yet it is becoming ever clearer that we as a nation are failing to protect them.
The Trump administration has often cited consolidation as a path to efficiency. But history shows that USDA reorganizations have weakened, not strengthened, the agency’s capacity.
Grace Wickerson, the Federation of American Scientists’ Senior Manager, Climate and Health, today accepted a national recognition, the “Grist 50” award, bestowed by the editorial board of Grist, a nonprofit, independent media organization.